The power of dataviz (150 years ago)

Science, like the rest of human life, is subject to fashions. Data visualisation is the latest trend: policy-makers and the public are all under its charm, and researchers magically suspend their disbelief — give me a fancy image, and I won’t look too closely at your p-values. So I was intrigued by the discovery, at a talk few days ago by Paul Jackson of the Office for National Statistics, that there are precedents, and that they have a long history behind them.

The story is that of John Snow, an epidemiologist who was persuaded, against the received wisdom of the mid-nineteenth century,  that cholera does not propagate through air but through contaminated water or food. But how to convince others? When cholera struck London in 1854, Snow began plotting the location of deaths on a map of Soho: he represented each death through a line parallel to the building front in which the person died.

snow_cholera_map

Snow soon realised that there was a concentration of “death lines” around Broad Street — more specifically, around a water pump at the corner between Broad and Cambridge St.

snow_cholera_map_detail

He managed to convince the authorities to remove the handle of the pump, so that people could no longer use it: in a few days, the number of deaths in the area plummeted. Snow had proven his point and saved lives: using no medical trials, no sophisticated chemistry, just with some basic count statistics, and a clever dataviz.

Sharing medical data for research: Why we should all care

A major health data plan is on the verge of being called off, to never have a chance again. It is supposed to anonymise all the patient records in the National Health Service (NHS) in the UK, linking them together into one single, giant database, and making them available under controlled use conditions to health researchers and (controversially) to commercial companies too. Public outcry has led to the plan being delayed for six months.

Stethoscope on clipboard over blood pressure print out #5 In an article published in The Guardian last week, Ben Goldacre, a medical doctor and high-profile media commentator on science matters, rightly identifies what the point is: in principle, the public accepts release of data for scientific purposes, but resists commercial exploitation. And rightly so: medical knowledge results from the study of several cases, and the higher the availability of cases, the more accurate the results; in the era of big data, it is also clear that aggregation and sharing of a wealth of data such as those held by the NHS is a unique opportunity for medical science to discover ways of saving lives. On the other hand, use of data for any other purposes looks much more opaque, and people understandably feel it might lead to discrimination and potentially negative individual consequences, for example if disclosure of the health history of a person results in higher insurance premiums, or rejection of job applications.

Continue reading “Sharing medical data for research: Why we should all care”