Data, health online communities and the collaborative economy: my tour of Québec

This November gave me the opportunity to give talks and participate in scientific events throughout Québec.

comsanteI started in Montréal, with a seminar at ComSanté, the health communication research centre of Université du Québec à Montréal (UQAM), where I presented my recently published book on websites on eating disorders. While most media attention focused on controversial “pro-anorexia” contents, presented as an undesirable effect of online free speech, I made the point that this part of the webosphere is rather to be seen as a symptom of the effects of current transformations of healthcare systems under austerity policies. Cuts in public health spending encourage patients to be active, informed and equipped, but the resulting social pressure creates paradoxical behaviors and risk-taking.

Also in Montréal, I was invited to a discussion with economic journalist Diane Bérard on the growth and crisis of theecocoll collaborative economy. About 50 people attended the event, co-organised by co-working space L’Esplanade, OuiShare Montréal and the journal Les Affaires. Diane summarized the essentials of the event in a blog post just the day after, and noted six main points:

  • The Uber case dominates discussions and divides the audience – though the collaborative economy is not (just) Uber.
  • The discussion gets easily polarized – a result of the tension between commercial and non-commercial goals of the collaborative economy.
  • We still know little of the business models of these platforms and the external factors that facilitate or hinder their success.
  • Sharing is in fact a niche market – now probably declining after the first enthusiasms.
  • The key issue for the future is work – its transformations, and how it is re-organizing itself.
  • Collaborative principles advance even outside the world of digital platforms, and sometimes permeate more traditional sectors. The near future of collaboration are sharing cities.

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Twitter networks at the OuiShare Fest Barcelona 2016

Twitter conversations are one way through which participants in an event engage with the programme, comment and discuss about the talks they attend, prolong questions-and-answers sessions. Twitter feeds have become part of the official communication strategy of major events and serve documentation and information purposes, both for attendees and for outsiders. While tweeting is becoming more an more a prerogative of “official” accounts in charge of event communication, it is also a potential tool in the hands of each participant, allowing anyone to join the conversation at least in principe. Earlier, I have discussed how the Twitter discussion networks formed at the OuiShare Fest 2016, a major gathering of the collaborative economy community that took place last May in Paris, were one opportunity to see such mechanisms in place.

Here is a similar analysis, performed after the OuiShareFest Barcelona – the Spanish-language version of the event that I had the chance of attending last week. The size of this event is smaller than its Paris counterpart but nonetheless impressive: I mined 3497 tweets with the official hashtag of the event, #OSfestBCN, mostly written during the two days of the event (my count stopped the day after). Do Twitter #OSfestBCN conversations describe the community?

First, when did people tweet? As often happens, there are more tweets on the first than the second day of the event, and there are more tweets during the first hours of each day, though the difference between morning and afternoon is not dramatic; tweeting declines only at night, when the fest’s activities are suspended. Online activity is not independent of what happens on the ground – quite on the contrary, it follows the timings of physical activity.

osfestbcn_tweetsovertime_days12_plum

Who tweeted most? Obviously the official @OuiShare_es account, who published 630 tweets – nine times as many as the second in the ranking. Those who follow immediately are all individuals, who have between 50-70 tweets each.

Who tweeted with whom? What interests me most are conversations – who interacts with whom. The most explicit way of seeing this with Twitter data is to look at replies: who replied to whom. This corresponds to a small social network of 134 tweeters (the coloured points in the next Figure). Ties among them are represented as lines in the figure, and the size of points depends on the number of their incoming ties, that is, the number of replies received. Beyond the official @OuiShare_es account, several tweeters receive a lot of replies:  they are mostly speakers, track leaders, or otherwise important actors in the community.

replies

Now, who tweeted about whom? This is also an important aspect of Twitter conversations. We can capture it with the social network of mentions, associating each tweeter with those they mentioned, and counting the number of times they did so. This will be a larger network (with 2553 mentions) compared to the net of replies, as mentions can be of many types and also include retweets.

The below figure represents the network of mentions. As before, the colored points are tweeters (the larger they, the more often they have been mentioned by others), while lines between them are mentions (the thicker they are, the higher the number of times a user has mentioned another). Colors represent a measure called “modularity”, which identifies clusters of nodes whereby internal connections are stronger than the connections they have with nodes in other clusters; so for example, a purple node is more likely to have mentioned other purple nodes, than blue nodes.

Modularity is computed based only on counts of ties, without considering the nature of their conversations (what the mention is about) ou other qualities of nodes (gender, nationality, language of tweeters, etc.). And yet, it clearly identifies specific sub-communities. The very numerous, central purple nodes are the OuiShare community: connectors, activists, and others close to the organization especially within Spain. The green nodes at the bottom-left are the catalan community, including representatives of local authorities,notably the Barcelona municipality. The blue nodes at the bottom are different actors and groups from other parts of Spain. The few black nodes on the left are the international OuiShare community, and the sparse orange ones at the top are other international actors.

mentions22

This analysis is part of a larger research project, “Sharing Networks“, led by Antonio A. Casilli and myself, and dedicated to the study of the emergence of communities of values and interest at the OuiShare Fest 2016. Twitter networks will be combined with other data on networking – including informal networking which we are capturing through a (perhaps old-fashioned, but still useful!) survey.

The analyses and visualizations above were done with the package TwitteR in R as well as Gephi.

Online health communities: data for doctors, patients and families

Online health communities have been demonstrated to be an important part of the self-empowering experience of today’s patients. While most attention so far has been devoted to self-styled health communities, where patients autonomously share expertise and experience, today policymakers and healthcare providers are harnessing the power of this very idea and are offering similar solutions themselves.

Earlier this week at the OuiShare Fest Barcelona – a major get-together of the Spanish-speaking collaborative economy community in Europe – a few of these initiatives were presented.

keyboard-and-stethoscopeSocial Diabetes is a small company founded by and for patients, that offers a mobile app for online, real-time health monitoring services. Diabete sufferers can use it to optimally adjust their insulin dosage based on their carb count and blood sugar levels; in some cases, they can also track their exercise and patterns of behavior to receive alerts whenever relevant. Patients can share this information with their doctors, also through the app; and can discuss with other patients. This is an example of a user-based innovation where autonomous patients take the initiative, aiming to take control of their health and life. Still, physicians have been allowed in: the platform has a medical advisory board, and individual doctors can register as users to follow their patients.

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Are we all data laborers?

autonomyI gave today a talk at AUTONOMY, a major festival of urban mobility in Paris, where new technologies are at center stage, from driverless cars to electric scooters, bike-sharing solutions, and connected infrastructure for the smart city. I had been asked to talk about labor in digital platforms, such as those offering mobility services.

Digital platforms are often thought of in terms of automation, but it islogos clear that there is labor too: we all have in mind the example of the couriers and drivers of the “on-demand” economy. But there’s more: I’ll show how platforms involve the labor of everyone, including passengers and users of all types. By labor, I mean here human activity that produces data and information – the key source of value for platforms. It is often an implicit, invisible activity of which we may not even be aware – as we tend to focus more on consumption aspects as we talk routinely about “car pooling” or “car sharing”, rather than looking at the underlying productive effort. This is what scholars call “digital labor”.

Four eco-systems

Specialist Antonio Casilli distinguishes four forms of digital labor in platforms, and I am now going to briefly outline them.

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The “pro-ana” phenomenon: Eating disorders and social networks

proanaA new book is just out, co-authored by myself and Antonio A. Casilli: a synthesis of our 5-odd years research on the self-styled internet communities, blogs and forums of persons with eating disorders. For years, lively controversies have surrounded these websites, where users express their distress without filters and go as far as to describe their crises, their vomiting and their desire for an impossibly thin body – thereby earning from the media a reputation for “promoting anorexia” (shortened as “pro-ana”). In France, an attempt to outlaw these online spaces last year was unsuccessful, not least because of our active resistance to it.

The book tells the story of our discovery of these communities, their members, their daily lives and their social networks. Ours was the first study to go beyond just contents, and discover the social environments in which they are embedded. We explored the social networks (not only online relationships, but day-to-day interactions at school or work, in the family, and among friends) of internet users with eating disorders, and related them to their health. The results defy received wisdom – and explain why banning these websites is not the right solution.

Internet deviance or public health budget cuts?

It turns out that “pro-ana” is less a form of internet deviance than a sign of more general problems with health systems. Joining these online communities is a way to address, albeit partially and imperfectly, the perceived shortcomings of healthcare services. Internet presence is all the more remarkable for those who live in “medical deserts” with more than an hour drive to the nearest surgery or hospital. At the time of the survey in France, a number of areas lacked specialist services for eating disorder sufferers.

 

Availability of specialized services and support for eating disorder sufferers in France in 2012. Source: AFDAS-TCA & FNA-TCA.

Availability of specialized services and support for eating disorder sufferers in France in 2014. Source: AFDAS-TCA & FNA-TCA.

These people do not always aim to refute medical norms. Rather, they seek support for everyday life, after and beyond hospitalisation. These websites offer them an additional space for socialisation, where they form bonds of solidarity and mutual aid. Ultimately, the paradoxical behaviours observed online are the result of underfunded health systems and cuts in public budgets, that impose pressure on patients. The new model of the ‘active patient’, informed and proactive, may have unexpected consequences.

 

A niche phenomenon with wider repercussions

In this sense, “pro-ana” websites are not just a niche phenomenon, but a prism through which we can read broader societal issues: our present obsession with body image, our changing relationships with medical authorities, the crisis and deficit of our publich health systems, as well as the growing restrictions to our freedom of expression online.

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Data and theory: substitutes or complements? Lessons from history of economics

EEToday, my chapter on “Formalization and mathematical modelling” is published in a new series of three reference books on History of Economic Analysis (edited by G. Faccarello and H. Kurz, Edward Elgar). The chapter draws heavily on key ideas I developed as part of my thesis on the origins of mathematical economics. But this was a long time ago and reading it again today, I see it in a different light. I notice in particular that economics developed its distinctive mathematical flavour, which makes it neatly stand out relative to the other social sciences, at times in which social research was data-poor – and it did so not despite data paucity, but precisely because of it. William S. Jevons, a 19th-century forefather of the discipline who was clearly aware of the relevance of maths, wrote in 1871:

“The data are almost wholly deficient for the complete solution of any one problem”

yet:

“we have mathematical theory without the data requisite for precise calculation”

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The international conference of French-speaking sociologists

Crédit: @clemenceRmp sur Twitter (#AISLF2016)

Credit: @clemenceRmp on Twitter (#AISLF2016)

Just attended the 20th conference of AISLF, the international association of French-speaking sociologists, in Montréal. Back home yesterday I found a state of fear and madness (again, alas…). But before that, I enjoyed a nice time with fellow researchers from France and (perhaps even more intriguingly, or simply more newly) from the different countries in which French is spoken, ranging from Canada, Belgium and Switzerland to several African countries. It was a good opportunity to get a sense of what research is done around us.

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Credit: @ArthurRenault on Twitter (#AISLF2016)

Lots of good presentations. Interestingly, digital sociology appears to be on the up, as many researchers investigated topics that had to do with digital technologies, their usages, and the ensuing economic and social transformations. That there was no dedicated stream is not in itself a problem: if digital technologies permeate all our lives, they should not be studied in a separate subfield but as part of the sociology of work, of gender, of education etc.

(On this particular point, I am proud to say I was interviewed, with Antonio Casilli, by ICI – Radio Canada, and our contribution was featured by the French Consulate in Québec, a supporter of the event).

Credit: @ptubaro on Twitter (#AISLF2016)

Credit: @ptubaro on Twitter (#AISLF2016)

The other good thing is the emergence of social networks research in two keynote presentations – by Antonio A. Casilli and Michel Grossetti – which is far from a small achievement, considering that the association does not have a dedicated social networks research group (I would love to see one being created sooner or later… like BSA-SNAG, the group I convene for British Sociological Association).

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