Archive for the ‘ Data in society ’ Category

A cooperative approach to platforms

I was yesterday at a nice and interesting conference in Brussels on “How to coop the collaborative economy“, organized by major actors of the Belgian cooperative movement and building on the experience of a growing network of persons and organizations to enhance a cooperative view of the internet. Several themes in connection with my studies of the collaborative economy emerged, and I’d like to summarize here what were, in my view, the main lessons learned of the day.

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Special RFS issue on Big Data

Revue Française de Sociologie invites article proposals for a special issue on “Big Data, Societies and Social Sciences”, edited by Gilles Bastin (PACTE, Sciences Po Grenoble) and myself.

Focus is on two inextricably interwoven questions: how do big data transform society? How do big data affect social science practices?

Substantive as well as epistemological / methodological contributions are welcome. We are particularly interested in proposals that examine the social effects and/or the scientific implications of big data based on first-hand experience in the field.

The deadline for submission of extended abstracts is 28 February 2017; for full contributions, it is 15 September 2017. Revue Française de Sociologie accepts articles in French or English.

Further details and guidelines for submission are in the call for papers.

Data, health online communities and the collaborative economy: my tour of Québec

This November gave me the opportunity to give talks and participate in scientific events throughout Québec.

comsanteI started in Montréal, with a seminar at ComSanté, the health communication research centre of Université du Québec à Montréal (UQAM), where I presented my recently published book on websites on eating disorders. While most media attention focused on controversial “pro-anorexia” contents, presented as an undesirable effect of online free speech, I made the point that this part of the webosphere is rather to be seen as a symptom of the effects of current transformations of healthcare systems under austerity policies. Cuts in public health spending encourage patients to be active, informed and equipped, but the resulting social pressure creates paradoxical behaviors and risk-taking.

Also in Montréal, I was invited to a discussion with economic journalist Diane Bérard on the growth and crisis of theecocoll collaborative economy. About 50 people attended the event, co-organised by co-working space L’Esplanade, OuiShare Montréal and the journal Les Affaires. Diane summarized the essentials of the event in a blog post just the day after, and noted six main points:

  • The Uber case dominates discussions and divides the audience – though the collaborative economy is not (just) Uber.
  • The discussion gets easily polarized – a result of the tension between commercial and non-commercial goals of the collaborative economy.
  • We still know little of the business models of these platforms and the external factors that facilitate or hinder their success.
  • Sharing is in fact a niche market – now probably declining after the first enthusiasms.
  • The key issue for the future is work – its transformations, and how it is re-organizing itself.
  • Collaborative principles advance even outside the world of digital platforms, and sometimes permeate more traditional sectors. The near future of collaboration are sharing cities.

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Online health communities: data for doctors, patients and families

Online health communities have been demonstrated to be an important part of the self-empowering experience of today’s patients. While most attention so far has been devoted to self-styled health communities, where patients autonomously share expertise and experience, today policymakers and healthcare providers are harnessing the power of this very idea and are offering similar solutions themselves.

Earlier this week at the OuiShare Fest Barcelona – a major get-together of the Spanish-speaking collaborative economy community in Europe – a few of these initiatives were presented.

keyboard-and-stethoscopeSocial Diabetes is a small company founded by and for patients, that offers a mobile app for online, real-time health monitoring services. Diabete sufferers can use it to optimally adjust their insulin dosage based on their carb count and blood sugar levels; in some cases, they can also track their exercise and patterns of behavior to receive alerts whenever relevant. Patients can share this information with their doctors, also through the app; and can discuss with other patients. This is an example of a user-based innovation where autonomous patients take the initiative, aiming to take control of their health and life. Still, physicians have been allowed in: the platform has a medical advisory board, and individual doctors can register as users to follow their patients.

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Are we all data laborers?

autonomyI gave today a talk at AUTONOMY, a major festival of urban mobility in Paris, where new technologies are at center stage, from driverless cars to electric scooters, bike-sharing solutions, and connected infrastructure for the smart city. I had been asked to talk about labor in digital platforms, such as those offering mobility services.

Digital platforms are often thought of in terms of automation, but it islogos clear that there is labor too: we all have in mind the example of the couriers and drivers of the “on-demand” economy. But there’s more: I’ll show how platforms involve the labor of everyone, including passengers and users of all types. By labor, I mean here human activity that produces data and information – the key source of value for platforms. It is often an implicit, invisible activity of which we may not even be aware – as we tend to focus more on consumption aspects as we talk routinely about “car pooling” or “car sharing”, rather than looking at the underlying productive effort. This is what scholars call “digital labor”.

Four eco-systems

Specialist Antonio Casilli distinguishes four forms of digital labor in platforms, and I am now going to briefly outline them.

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The “pro-ana” phenomenon: Eating disorders and social networks

proanaA new book is just out, co-authored by myself and Antonio A. Casilli: a synthesis of our 5-odd years research on the self-styled internet communities, blogs and forums of persons with eating disorders. For years, lively controversies have surrounded these websites, where users express their distress without filters and go as far as to describe their crises, their vomiting and their desire for an impossibly thin body – thereby earning from the media a reputation for “promoting anorexia” (shortened as “pro-ana”). In France, an attempt to outlaw these online spaces last year was unsuccessful, not least because of our active resistance to it.

The book tells the story of our discovery of these communities, their members, their daily lives and their social networks. Ours was the first study to go beyond just contents, and discover the social environments in which they are embedded. We explored the social networks (not only online relationships, but day-to-day interactions at school or work, in the family, and among friends) of internet users with eating disorders, and related them to their health. The results defy received wisdom – and explain why banning these websites is not the right solution.

Internet deviance or public health budget cuts?

It turns out that “pro-ana” is less a form of internet deviance than a sign of more general problems with health systems. Joining these online communities is a way to address, albeit partially and imperfectly, the perceived shortcomings of healthcare services. Internet presence is all the more remarkable for those who live in “medical deserts” with more than an hour drive to the nearest surgery or hospital. At the time of the survey in France, a number of areas lacked specialist services for eating disorder sufferers.

 

Availability of specialized services and support for eating disorder sufferers in France in 2012. Source: AFDAS-TCA & FNA-TCA.

Availability of specialized services and support for eating disorder sufferers in France in 2014. Source: AFDAS-TCA & FNA-TCA.

These people do not always aim to refute medical norms. Rather, they seek support for everyday life, after and beyond hospitalisation. These websites offer them an additional space for socialisation, where they form bonds of solidarity and mutual aid. Ultimately, the paradoxical behaviours observed online are the result of underfunded health systems and cuts in public budgets, that impose pressure on patients. The new model of the ‘active patient’, informed and proactive, may have unexpected consequences.

 

A niche phenomenon with wider repercussions

In this sense, “pro-ana” websites are not just a niche phenomenon, but a prism through which we can read broader societal issues: our present obsession with body image, our changing relationships with medical authorities, the crisis and deficit of our publich health systems, as well as the growing restrictions to our freedom of expression online.

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Data and theory: substitutes or complements? Lessons from history of economics

EEToday, my chapter on “Formalization and mathematical modelling” is published in a new series of three reference books on History of Economic Analysis (edited by G. Faccarello and H. Kurz, Edward Elgar). The chapter draws heavily on key ideas I developed as part of my thesis on the origins of mathematical economics. But this was a long time ago and reading it again today, I see it in a different light. I notice in particular that economics developed its distinctive mathematical flavour, which makes it neatly stand out relative to the other social sciences, at times in which social research was data-poor – and it did so not despite data paucity, but precisely because of it. William S. Jevons, a 19th-century forefather of the discipline who was clearly aware of the relevance of maths, wrote in 1871:

“The data are almost wholly deficient for the complete solution of any one problem”

yet:

“we have mathematical theory without the data requisite for precise calculation”

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