With a group of colleagues from Universitat Autònoma de Barcelona and in Collaboration with OuiShare, we are studying networking at the event. The OuiShare Fest aims, among other things, to bring people together: we want to see how interactions between participants facilitate circulation of ideas and possibly give rise to future collaborations.
Research on social networks is experiencing unprecedented growth, fuelled by the consolidation of network science and the increasing availability of data from digital networking platforms. However, it raises formidable ethical issues that often fall outside existing regulations and guidelines. New tools to collect, treat, store personal data expose both researchers and participants to specific risks. Political use and business capture of scientific results transcend standard research concerns. Legal and social ramifications of studies on personal ties and human networks surface.
We invite contributions from researchers in the social sciences, economics, management, statistics, computer science, law and philosophy, as well as other stakeholders to advance the ethical reflection in the face of new research challenges.
The workshop will take place on 5 December 2017 (full day) at MSH Paris-Saclay, with open keynote sessions to be held on 6 December 2017 (morning) at Hôtel de Lauzun, a 17th century palace in the heart of historic Île de la Cité.
Let us know if you wish to be panel discussant or session chair by 20 October 2017 (send to: firstname.lastname@example.org).
Acceptance notifications will be sent by 31 October 2017.
Registration is free but mandatory: speakers (and discussants and chairs) should register between 15 October and 15 November 2017, other attendees by 30 November 2017.
José Luis Molina, Autonomous University of Barcelona, “HyperEthics: A Critical Account” Bernie Hogan, Oxford Internet Institute, “Privatising the personal network: Ethical challenges for social network site research”
Antonio A. Casilli (Telecom ParisTech, FR), Alessio D’Angelo (Middlesex University, UK), Guillaume Favre (University of Toulouse Jean-Jaurès, FR), Bernie Hogan (Oxford Internet Institute, UK), Elise Penalva-Icher (University of Paris Dauphine, FR), Louise Ryan (University of Sheffield, UK), Paola Tubaro (CNRS, FR).
The OuiShare Fest brings together representatives of the international collaborative economy community. One of its goals is to expose participants to inspiring new ideas, while also offering them an opportunity for networking and building collaborative ties.
At the 2016 OuiShare Fest, we ran a study of people’s networking. Attendees, speakers and team members were asked to complete a brief questionnaire, on paper or online.Through this questionnaire, we gained information on the relationships of 445 persons – about one-third of participants.
Ties that separate: the inheritance of past relationships
For many participants, the Fest was an opportunity to catch up with others they knew before. Of these relations, half are 12 months old at most. About 40% of them were formed at work; 15% at previous OuiShare Fests or other collaborative economy experiences; 9% can be ascribed to living in the same town or neighborhood; and 7% date back to school time.
Figure 1 is a synthesis of these “catching-up-with-old-friends” relationships, in the shape of a network where small black dots represent people and blue lines represent social ties between them. At the center of the graph are “isolates”, participants who had no pre-existing relationship among OuiShare Fest attendees. The remaining 60% have prior connections, but form part of separate clusters. Some of them (27%) form a rather large component, visible at the top of the figure, where each member is directly or indirectly connected to anyone else in that component. There are also two medium-sized clusters of connected people at the bottom. The rest consists of many tiny sub-groups, mostly of 2-3 individuals each.
Ties that bind: new acquaintances made at the event
Participants told us that they also met new persons at the Fest. Figure 2 enriches Figure 1 by adding – in red – the new connections that people made during the event. The ties formed during the Fest connect the clusters that were separate before: now, 86% of participants are in the largest network component, meaning that any one of them can reach, directly or indirectly, 86% of the others.
I am now in Montréal, where I participated, last Friday, in a panel on Open Data at “Science & You” international conference. It was interesting for me to reflect on how the picture has changed since my previous panel on the same topic – in Kiev in 2012. Back then, we were busy trying to convince public administrations that data opening was good for transparency and could help improve services to communities. Since then, a lot of attempts have been made in numerous countries – local authorities often pioneering the process, followed only later by central governments (one example cited in my panel was Québec City). What is made open is typically information from public registers (first names of newborns, records of road accidents) and increasingly, from technological devices and sensors (bus traffic information).
There are some conditions to be met for a dataset to be said “open”:
Technically, it needs to be “raw”, detailed, digital and reusable. The French Interior Ministry released results of the first round of the recent presidential elections within a few days, at polling station level. This is sufficiently detailed (with over 69,000 polling stations throughout the country), raw (allowing aggregations, comparisons etc.), and digital/reusable (so much so that the newspaper Le Monde could develop a user-friendly application to let readers easily check results in their neighborhoods). Some would also insist that “open” data should be released in non-proprietary formats (better .csv than .xls, for example).
Legally, the data must come with a license that allows re-use by third parties (typically within the Creative Commons family). Ideally, no type of reuse should be ruled out (including somewhat controversially, commercial / for-profit reuse).
Economically, the data should be available to all for free (or at least with minimal charges if data preparation requires extra work or expenses).
If in the past few years, a lot of thought has been devoted to the “ideal” conditions for data opening and how this would positively affect public service, the data landscape has now significantly changed.
Focus is on two inextricably interwoven questions: how do big data transform society? How do big data affect social science practices?
Substantive as well as epistemological / methodological contributions are welcome. We are particularly interested in proposals that examine the social effects and/or the scientific implications of big data based on first-hand experience in the field.
The deadline for submission of extended abstracts is 28 February 2017; for full contributions, it is 15 September 2017. Revue Française de Sociologie accepts articles in French or English.
This November gave me the opportunity to give talks and participate in scientific events throughout Québec.
I started in Montréal, with a seminar at ComSanté, the health communication research centre of Université du Québec à Montréal (UQAM), where I presented my recently published book on websites on eating disorders. While most media attention focused on controversial “pro-anorexia” contents, presented as an undesirable effect of online free speech, I made the point that this part of the webosphere is rather to be seen as a symptom of the effects of current transformations of healthcare systems under austerity policies. Cuts in public health spending encourage patients to be active, informed and equipped, but the resulting social pressure creates paradoxical behaviors and risk-taking.
Also in Montréal, I was invited to a discussion with economic journalist Diane Bérard on the growth and crisis of the collaborative economy. About 50 people attended the event, co-organised by co-working space L’Esplanade, OuiShare Montréal and the journal Les Affaires. Diane summarized the essentials of the event in a blog post just the day after, and noted six main points:
The Uber case dominates discussions and divides the audience – though the collaborative economy is not (just) Uber.
The discussion gets easily polarized – a result of the tension between commercial and non-commercial goals of the collaborative economy.
We still know little of the business models of these platforms and the external factors that facilitate or hinder their success.
Sharing is in fact a niche market – now probably declining after the first enthusiasms.
The key issue for the future is work – its transformations, and how it is re-organizing itself.
Collaborative principles advance even outside the world of digital platforms, and sometimes permeate more traditional sectors. The near future of collaboration are sharing cities.
Online health communities have been demonstrated to be an important part of the self-empowering experience of today’s patients. While most attention so far has been devoted to self-styled health communities, where patients autonomously share expertise and experience, today policymakers and healthcare providers are harnessing the power of this very idea and are offering similar solutions themselves.
Earlier this week at the OuiShare Fest Barcelona – a major get-together of the Spanish-speaking collaborative economy community in Europe – a few of these initiatives were presented.
Social Diabetes is a small company founded by and for patients, that offers a mobile app for online, real-time health monitoring services. Diabete sufferers can use it to optimally adjust their insulin dosage based on their carb count and blood sugar levels; in some cases, they can also track their exercise and patterns of behavior to receive alerts whenever relevant. Patients can share this information with their doctors, also through the app; and can discuss with other patients. This is an example of a user-based innovation where autonomous patients take the initiative, aiming to take control of their health and life. Still, physicians have been allowed in: the platform has a medical advisory board, and individual doctors can register as users to follow their patients.
I gave today a talk at AUTONOMY, a major festival of urban mobility in Paris, where new technologies are at center stage, from driverless cars to electric scooters, bike-sharing solutions, and connected infrastructure for the smart city. I had been asked to talk about labor in digital platforms, such as those offering mobility services.
Digital platforms are often thought of in terms of automation, but it is clear that there is labor too: we all have in mind the example of the couriers and drivers of the “on-demand” economy. But there’s more: I’ll show how platforms involve the labor of everyone, including passengers and users of all types. By labor, I mean here human activity that produces data and information – the key source of value for platforms. It is often an implicit, invisible activity of which we may not even be aware – as we tend to focus more on consumption aspects as we talk routinely about “car pooling” or “car sharing”, rather than looking at the underlying productive effort. This is what scholars call “digital labor”.
The book tells the story of our discovery of these communities, their members, their daily lives and their social networks. Ours was the first study to go beyond just contents, and discover the social environments in which they are embedded. We explored the social networks (not only online relationships, but day-to-day interactions at school or work, in the family, and among friends) of internet users with eating disorders, and related them to their health. The results defy received wisdom – and explain why banning these websites is not the right solution.
Internet deviance or public health budget cuts?
It turns out that “pro-ana” is less a form of internet deviance than a sign of more general problems with health systems. Joining these online communities is a way to address, albeit partially and imperfectly, the perceived shortcomings of healthcare services. Internet presence is all the more remarkable for those who live in “medical deserts” with more than an hour drive to the nearest surgery or hospital. At the time of the survey in France, a number of areas lacked specialist services for eating disorder sufferers.
These people do not always aim to refute medical norms. Rather, they seek support for everyday life, after and beyond hospitalisation. These websites offer them an additional space for socialisation, where they form bonds of solidarity and mutual aid. Ultimately, the paradoxical behaviours observed online are the result of underfunded health systems and cuts in public budgets, that impose pressure on patients. The new model of the ‘active patient’, informed and proactive, may have unexpected consequences.
A niche phenomenon with wider repercussions
In this sense, “pro-ana” websites are not just a niche phenomenon, but a prism through which we can read broader societal issues: our present obsession with body image, our changing relationships with medical authorities, the crisis and deficit of our publich health systems, as well as the growing restrictions to our freedom of expression online.